Tag Archives: pregnancy

Bundle of joy?

By Bethany Bray March 28, 2019

What day of the week is it?” “Why can’t I get my baby to stop crying?” “Did I take a shower this morning, or was that yesterday … or the day before?” These are the types of questions that parents — and especially mothers — often find themselves asking in the foggy, exhausting and often-overwhelming months that follow the birth of a new baby.

“The first three months [of motherhood] are a twilight zone,” says Susannah Baldwin, a licensed professional counselor (LPC) who is the founder and director of a Greenville, South Carolina, counseling practice that specializes in maternal mental health. “Some people call it the fourth trimester, but I call it the twilight zone phase. … They go from working to, boom, they have a baby and don’t leave the house for two weeks.”

Regardless of whether the child is the woman’s first or fifth, the postpartum period can be characterized by the presence of unique mental health needs and challenges. In addition to learning (or reacclimating to) the ropes of parenting and bonding with a new baby, mothers must adjust to changes in their identity and to different pressures on their relationship with a partner and the family system as a whole. Navigating this major life change is made more difficult by sleep deprivation and by bodies that are undergoing the biological and hormonal shifts associated with not being pregnant anymore.

Counselors can play a vital role in preparing clients for this “twilight zone” and normalizing the often anxiety-provoking challenges that accompany the postpartum period. One of the most important things counselors can do for postpartum clients, Baldwin says, is to create a welcoming space and foster a therapeutic bond so that these mothers are comfortable talking through the good, the bad and the ugly of their experience. This includes bringing to light the irrational, fearful and sometimes shame-inducing thoughts that can be part of new motherhood.

These challenges are amplified for mothers who have a pre-existing mental illness, who don’t have a stable partner or strong family supports, or who are part of various at-risk populations, including those living in poverty. Clients who already struggle with self-doubt, negative thought patterns, unprocessed trauma or other issues related to mental illness may find it overwhelming to assume the role of caregiver for themselves and for an infant, says Baldwin, whose practice serves clients going through issues related to infertility, pregnancy, traumatic childbirth or postpartum distress.

Postpartum “is such a critical time,” says Baldwin, a practitioner certified in perinatal mental health. “If existing issues are left untreated, it will affect their attachment and entire [parenting] experience. Do not underestimate that this is a time of gravity in a new parent’s life. Really attend to that and keep it in mind.”

Baby blues

It is normal for new mothers to experience periods of worry or sadness in the days and weeks following the birth of a baby. If these feelings intensify or last longer than a few weeks, however, it may be a sign of postpartum depression.

The Centers for Disease Control and Prevention reports that 1 in 9 mothers nationwide experience depression either in postpartum or peripartum, which includes the period of pregnancy through and after the birth of a baby. Peripartum depression is the more accurate term to use because symptoms can begin during pregnancy itself, not just after the birth, notes Isabel A. Thompson, a licensed mental health counselor in Florida who is writing a book for mental health practitioners on strength-based approaches for working with clients with peripartum depression.

Counselors working with clients who are pregnant or are new mothers should listen carefully for potential indicators of peripartum depression. According to the organization Postpartum Support International, these red flags can include:

  • Crying and having persistent feelings of sadness
  • Feeling ambivalent toward the baby
  • Feeling numb, angry, irritable, guilty, restless or hopeless
  • Worrying about or having thoughts of harming the baby or oneself

Thompson, a member of the American Counseling Association, recommends that counselors conduct periodic wellness check-ins with all peripartum clients. This action helps screen for peripartum depression and mood disorders but can also identify other areas in which these clients are struggling. Check-in questions can include:

  • How is the client feeling in her relationship with a partner (if applicable)?
  • How much is the client socializing?
  • How is the client’s physical health? Is she eating regularly and sleeping when she is able?
  • Is the client feeling connected to her religion or spirituality (if applicable)?

“Also ask about her sense of meaning and purpose,” suggests Thompson, an assistant professor in the counseling department at Nova Southeastern University. “Sometimes in the day-to-day slog of caring for an infant, it’s easy to lose your sense of meaning. Bring her back to why she wanted to be a parent in the first place.”

Isolation can also come into play for new mothers. “Before,” Thompson says, “they were working and having social contact, and now they’re home alone. Help her find ways she can reintegrate with previous friendships and find support with other parents.”

Tools for the journey

The estimated prevalence of peripartum depression in the United States ranges from 8.9 percent of women during pregnancy to as much as 37 percent of mothers during the first year after birth of a baby. These statistics were included in a February 2019 JAMA article that recommended counseling — specifically cognitive behavior therapy (CBT) and interpersonal therapy — as an effective means of preventing perinatal depression.

The journal study, conducted by a government task force, compared the effectiveness of CBT and interpersonal therapy versus the effectiveness of physical activity, the use of antidepressants, omega-3 fatty acids, and other supportive and behavioral interventions such as infant sleep training and expressive writing. Researchers found the two therapy methods to be most effective in preventing perinatal depression, especially for mothers with a history of depression or “certain socioeconomic risk factors” such as poverty or single parenthood. Women who received either CBT or interpersonal therapy during the study were 39 percent less likely to develop perinatal depression than those who did not receive counseling.

The anxious and fearful thoughts that often come in pregnancy and postpartum can generate a barrage of new cognitive distortions, says Quinn K. Smelser, an ACA member and LPC in Washington, D.C., who is working on a doctoral dissertation about parent-child attachment and the Marschak Interaction Method. Teaching clients to challenge these distortions — such as through the help of CBT — can greatly enhance their ability to cope and persevere through the challenges of peripartum.

Smelser, who presented a session on attachment and maternal mental illness at the ACA 2018 Conference & Expo in Atlanta, says that person-centered approaches, mind-body interventions, breathing techniques and mindfulness can also be helpful with this population. Likewise, grounding techniques can be beneficial, but Smelser cautions counselors to remember that a woman’s body will process sensations differently as she progresses through pregnancy and postpartum. For example, Smelser had a client who found that pressing her feet into her shoes helped her to center herself — until she was about six months pregnant and the exercise just became painful.

Thompson notes that narrative therapy can also be helpful for new mothers. Each woman’s experience of conception, pregnancy, birth and postpartum will be different — and can range from easy to miserable. Having the client tell her story, whether it involved an unplanned cesarean section or was a long-awaited miracle after struggling with infertility, can help her process the experience, Thompson says.

Remember also that the childbirth experience itself can be traumatic and might require processing with a counselor. Thompson suggests having clients talk through or write (if they prefer) how the entire pregnancy, birth and postpartum period went for them and what they wished had been different.

A population at risk

When it comes to clients who are pregnant or new mothers, counselors’ first instinct may be to screen for signs of peripartum depression. That’s wise, given how common it is. But this population is also at risk for a number of other issues, from social isolation and burnout connected to exhaustion, to guilt and other emotions related to wanting — or not wanting — to return to work after maternity leave.

Baldwin, a co-author of the ACA Practice Brief on peripartum and postpartum anxiety, separates the issues that these clients are at risk for into three categories: perinatal distress, interpersonal distress and relationship distress.

Perinatal distress includes the classic symptoms associated with peripartum depression or anxiety, such as crying and sadness, but it extends to anything that is interfering with aspects of everyday life such as eating, sleeping, relationships or home life, Baldwin explains. For example, a mother with perinatal distress may be so worried that her baby is going to stop breathing that she stays up all night watching the child sleep. Or she stops checking the mail because there is a steep hill leading to her mailbox, and she’s afraid the baby might somehow fall out of the stroller.

Risk of isolation also falls under this category. An example is a mother who fears taking her baby out in public because it’s flu season, Baldwin says. “In American culture, we are driven to be independent and individualistic, and that drives parents to feel like they have to do everything alone. If they ask for help, it’s seen as a shortcoming,” Baldwin says. “The biggest threat [that can lead to isolation] is the cultural belief that you’re supposed to do this without anyone’s help.”

Interpersonal distress involves issues related to a woman’s changing identity and her transition to motherhood. Similar to what people experience during a midlife crisis, new mothers may feel generally unsettled in life. They may wrestle with difficult thoughts such as “I love my kid, but I don’t love this role” or “This isn’t what I thought it would be,” Baldwin says. This sense of unease can arrive with a first baby or a later birth.

“These crises come from subconscious places. [Mothers] don’t realize why they’re upset or unsettled,” Baldwin says. “They may find themselves making rash decisions. All the sudden, they have an awareness of a gap or hole that must be filled, and they don’t know what to do but try and fill it in.”

Relationship distress involves the new pressures that come when baby makes three (or four or five). Couples often assume that having a baby will make them stronger and create the family that they always wanted, Baldwin says. “But it can be the opposite if we’re not attentive to it. It’s so often underestimated, the huge impact that adding a child or dependent to a family will have,” she says.

Babies often provide lots of joy, but the simple reality is that they also exert a substantial drain on a couple’s finances, time and personal energy — all of which can affect the relationship dynamic. Clients may report feeling distant from their partner or struggling with a lack of intimacy after having a baby, Baldwin says. She adds that those struggles don’t revolve just around sex but also around finding time alone or experiencing a loving connection.

“Couples often put themselves on the back burner” when a new baby arrives, Baldwin says. “They haven’t been on a date in six months. Or perhaps they’re not fighting but only talk about bottles and play dates and not about other things. … Resentment and bickering over tasks — that’s what often brings people to therapy.”

Smelser, a trauma and play therapist at the Gil Institute for Trauma Recovery and Education in Fairfax, Virginia, notes that peripartum clients and their partners are at risk for developing unhealthy patterns in their relationships. Examples include not making time for each other, having vastly different parenting styles, not dividing up responsibilities in an equitable manner, and getting so ingrained in certain roles and patterns that all flexibility is lost. If not addressed, these issues can create tension and grow into larger problems later in the relationship, Smelser says.

Counselors can broach the subject by asking questions about a client’s dynamic with her partner, Smelser says. Prior to having a baby, the client may never have seen her partner with a child or in a caregiving role. How she perceives her partner now may need some therapeutic attention, Smelser says. In cases of a pre-existing mental illness, counselors should stress the importance of these clients getting the support they need so that they can focus on themselves and engage in self-care.

“There’s so much opportunity to psychoeducate a pregnant client or new mom,” Smelser says. “They just need help adjusting. Really deep dive into that rather than glossing over how stressful new motherhood is. Don’t dismiss it [as a clinician]. Really talk about it and validate those feelings.”

How counselors can help

Do you know the difference between a doula and a midwife? How about what organizations offer postpartum support groups in your community? Are you comfortable conferring with a client’s OB-GYN if she has questions about taking antidepressants while breastfeeding?

Counselors don’t have to be parents themselves to offer empathy and a listening ear to peripartum clients. Becoming familiar with and sensitive to the unique needs of this population can make a major difference to mothers who are struggling.

> Make a plan: During pregnancy, help these clients create a safety plan to ensure that both they and their babies get the support they need in the months ahead. This is important for any mother, but it is vital for those with pre-existing mental illnesses, Smelser says. Counselors should discuss what steps the client would take to keep herself and her child safe were she to find herself in crisis and unable to manage. Identify the supports that she can rely on ahead of time. Also talk through what her therapy plan will look like with an infant at home. What might her needs be, and what should she focus on in counseling?

“Stopping therapy for a few months because of the demands of motherhood is the absolute last thing we want to happen,” Smelser says. “Plan on how and when she will give herself breathers. Will it be a neighbor taking the baby for 30 minutes while she goes for a walk? What does she do now to regulate [her mental health], and how can we ensure that it still happens? Make sure the mother has lots of support so she can take a break if she needs to, to help her better regulate to return to caring for the child. Even an hour a day for self-care, that can be vitally important.”

> Identify supports: Counselors should familiarize themselves with the parenting and maternal support groups — especially those geared for participants with a particular mental health diagnosis such as depression — in their local areas. If one doesn’t exist, Smelser suggests counselors consider starting a group themselves.

Thompson advises counselors to also be aware of lactation consultants, breastfeeding support groups, and pelvic floor and other women’s/maternal health specialists in their communities. In addition to birth doulas, there are also postpartum doulas who can support mothers in the weeks after a birth, she notes. Also, counselors can help connect clients who are struggling financially with programs that provide food and other assistance to new mothers, including the federal Special Supplemental Nutrition Program for Women, Infants and Children (WIC).

Some mothers may not feel comfortable sharing their struggles in a support group format, Baldwin notes. She suggests that play groups and other child-focused activities can offer an alternative that helps these mothers find social support and meet parents who are facing similar stressors. Counselors should also be aware of parenting classes, moms groups and exercise classes for mothers at local houses of worship, community centers or medical centers.

Baldwin also encourages counselors to become familiar with Postpartum Support International (postpartum.net), an organization that provides various resources and maintains local networks across the country.

> Focus on strengths: A new mother may experience feelings of inadequacy when a new baby arrives and she struggles with seemingly simple tasks such as figuring out her baby’s sleep schedule. First-time mothers especially may have thoughts such as “Why can’t I do this?” or “I have a Ph.D., but I don’t know how to help my baby stop crying,” Thompson says. These assumed inadequacies can spur feelings of guilt, shame or anxiety.

Counselors can help by normalizing clients’ experiences, Thompson says. Explain that it’s routine to struggle, and there are nuances to learning a baby’s needs and preferences. In addition, counselors can highlight clients’ strengths and focus on what they are doing well, she says.

“Help her identify her strengths, even if she’s not feeling them currently. How did she feel strong before she had the baby? How can she reconnect with that?” Thompson says. “Ask questions in a way that can help [her] identify the differences between caring for an infant and succeeding at work. Explain that it’s a totally new role, and validate that it will be hard: ‘You are used to being able to accomplish things easily, but now even taking a shower requires you to wait for your husband to get home from work.’ Normalize those challenges.”

Smelser tells clients that it’s normal for all parents — including those without pre-existing mental health issues — to feel like they’ve reached their wits’ end at times. “Recognize those moments as just thoughts. It’s just a moment and will pass,” Smelser says. “There are so many shoulds, such as ‘I should be able to handle this.’ Identify that as a cognitive distortion and equip the client with tools to handle it.”

> Ask the right questions: Baldwin suggests that counselors start by asking peripartum clients general, broad questions and then “follow the trail” to identify areas where they are struggling and need more therapeutic work or support outside of counseling. Have them discuss life “before” and “after” the baby: How are they sleeping? How often do they get time to themselves? How is their relationship with their partner?

“Depending on how open they are,” Baldwin says, “ask more specific questions, such as ‘When was the last time you talked [with your partner] about something other than the baby, chores or errands? Do you have a ritual in place for spending time together and connecting?’ Depending on their answer, go down the trail and ask more: ‘How often do you bicker? How often do you feel you’re parenting solo?’ One of the biggest challenges is that prioritization. The baby and the bills and the stuff gets prioritized.”

Follow up with more leading questions, Baldwin suggests, such as “Tell me how much of your energy goes into worry. Who in your life helps you out emotionally, practically and socially? Do you have people who can help you in all three areas?”

One of the most important questions counselors can ask, Baldwin adds, is whether a client has a family history of postpartum depression.

> Explore expectations versus reality: Exploratory questions can also help clients work through expectations they might be harboring (either consciously or unconsciously) about parenthood, Baldwin says. She suggests asking, “Where did you imagine you’d be at this point, and how does it compare to where you are?”

“Perhaps they always imagined loving staying home [with a baby], and it turns out they hate it. … Expectations can get people in trouble,” Baldwin says.

Control issues can stem from creating an expectation — such as planning to breastfeed or have a natural birth — that goes unmet due to factors outside of a client’s control, Baldwin says. Clients who have perfectionist or Type A tendencies may struggle in this area. Counselors may need to help these clients understand that having a baby is simply not a controllable experience, she says. It’s not as simple as making a plan and sticking to it.

> Discuss returning to work: Counselors can play a key supportive role as clients navigate emotions surrounding the decision of whether to return to work. Remind clients that there is no right or wrong decision and that nothing is permanent: If they return to work and find themselves overwhelmed, they have the power to make changes, Baldwin says.

“The whole point of questions on this subject is to empower them to realize that they choose their job, their lifestyle,” Baldwin says. “Ask them, ‘What are your plans for returning to a job?’ I don’t even say your job. If they express hesitation or distress, then I’ll focus on it and ask more questions: ‘How did you imagine it would be? How did you imagine it would feel to drop your child off at day care?’”

Counselors can help clients who have made the decision to return to work prepare both mentally and practically. Baldwin suggests that clients do a “dry run” long before their first day back. This includes waking up early and getting themselves and their child ready as if they needed to leave by a certain time to make the drop-off at child care. “Going back to work doesn’t have to be this big ominous day,” Baldwin notes.

> Work on your vocabulary: Do you know what a nipple shield is? When was the last time you walked down the baby aisle at Target? Unless a counselor is familiar with a new mother’s world, that mother isn’t going to feel comfortable disclosing feelings that are intense, personal and sometimes scary in therapy sessions, Baldwin says. Counselors who don’t specialize in maternal mental health should bring themselves up to speed on current birth and parenting practices to connect with peripartum clients. Postpartum Support International has a page of resources for practitioners on its website and offers a certification in perinatal mental health.

Counselors should also be aware of the different options for childbirth, adds Thompson, who presented a session on breastfeeding and peripartum depression at the ACA 2017 Conference in San Francisco. Babies are born today in hospitals, at home or at birth centers with a range of support professionals, from midwives to nurses, all of which have different philosophies.

> Focus on attachment: Counselors who are working with postpartum clients should be mindful of the importance of the mother-infant bond and provide support for mothers who are struggling in this area. Research suggests that the bond formed through breastfeeding can be protective for mothers and reduce symptoms of peripartum depression, Thompson notes. However, many mothers are unable to breastfeed for various reasons, so counselors should frame questions on this topic carefully to avoid inducing guilty feelings. In addition to breastfeeding, mothers and infants can bond through skin-to-skin contact, by making eye contact while bottle feeding and in other ways, Thompson says.

Maternal mental illness — and untreated mental illness in particular — has the potential to affect the attachment bond, which can have negative implications for a child’s cognitive development and relationship patterns later in life, Smelser says. Counselors can ask questions to get indications of how well mothers are connecting with their babies. “How does she react when her child cries? Are there moments in the day when it’s harder?” Smelser says. “If she has a baby with colic, she may need a space where she can simply be honest and say, ‘It’s awful.’ Can she soothe her baby? What’s working and not working? Is she figuring [her child] out?”

Counselors can also normalize these struggles and stress to these clients that it is OK to ask for help whenever they need it, Smelser adds.

> Talk about medication: Many psychiatric medications have different risks and side effects when taken during pregnancy, breastfeeding and postpartum. Counselors must make sure that their clients are communicating with their prescribers, Smelser emphasizes. Counselors should also check in regularly during counseling sessions about clients’ medication management and how medications are affecting their mood. If granted permission by the client, counselors can also check in with the client’s OB-GYN and other medical professionals.

“Make sure everyone is talking to one another and that the mother is getting all the information she needs from her prescriber. Help and empower her to advocate and ask questions,” Smelser says. “Connections between practitioners — a client’s OB-GYN, prescriber and counselor — are not always that great. Medical professionals don’t always ask [patients] about mood or mental wellness. In an ideal world, all these people would be housed in the same space, but we are not there.”

Thompson also stresses the need for regular check-ins with clients about medication usage. Clients should discuss any changes in dosage with their prescribers, weighing the possible risks of taking the medication during pregnancy or breastfeeding against the risks to their own wellness if medication is reduced or not taken, she adds.

> Be baby friendly: Allowing and even inviting mothers to bring their newborns into counseling sessions can go a long way toward helping them feel supported and understood, Thompson notes. Finding child care can often be a barrier to treatment. When it comes to referrals, counselors should look for inpatient programs that allow new mothers to attend with their child, she adds.

> View mother and baby as one unit: In the United States, medical professionals often place greater focus on an infant’s health in the first few months of life. In reality, Thompson asserts, the mother’s and baby’s health are intertwined, and counselors should keep this in mind.

“During pregnancy, they were literally one unit, and only recently have become two. Emotionally, they’re still so bonded. That connection needs to be honored,” she says. “Addressing any mental health needs the mother has will automatically help her connect with her baby. If she is struggling with mental health, she will be less responsive to her baby’s facial cues and expressions. Healthier moms mean healthier babies.”

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Contact the counselors interviewed in this article:

 

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Additional resources

To learn more about the topics discussed in this article, take advantage of the following select resources offered by the American Counseling Association:

ACA Practice Briefs (counseling.org/knowledge-center/practice-briefs)

Use your ACA member login to access practice briefs on postpartum posttraumatic stress disorder, peripartum and postpartum anxiety, and peripartum and postpartum depression.

Counseling Today (ct.counseling.org)

ACA Interest Networks (counseling.org/aca-community/aca-groups/interest-networks)

  • Women’s Interest Network

 

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Bethany Bray is a staff writer and social media coordinator for Counseling Today. Contact her at bbray@counseling.org.

Letters to the editor: ct@counseling.org

 

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Opinions expressed and statements made in articles appearing on CT Online should not be assumed to represent the opinions of the editors or policies of the American Counseling Association.

FASD: A guide for mental health professionals

By Jerrod Brown July 10, 2017

Fetal alcohol spectrum disorders (FASD), which researchers have estimated affect 2 to 5 percent of the U.S. population, are lifelong conditions that result from exposure to alcohol in utero. Kenneth L. Jones, David W. Smith and colleagues are credited with discovering the birth defects and long-term impacts on cognitive and social functioning caused by fetal alcohol syndrome in 1973.

Prenatal alcohol exposure can result in a host of issues related to:

  • Cognitive functioning (e.g., impulse control, attention, executive functioning)
  • Social functioning (e.g., communication skills, recognition of social cues)
  • Adaptive functioning (e.g., problem-solving, ability to adapt to new situations)

Furthermore, several neurological issues characterize FASD, including stunted cell and nerve growth, elevated rates of cell mortality, neurotransmitter interruptions and migration issues in organic brain growth. Complicating matters, the overwhelming majority of individuals with FASD experience an array of psychiatric disorders, increasing the likelihood that these individuals will need specialized services from mental health care providers.

Unfortunately, many of these providers and professionals lack the necessary training and expertise to accurately identify and effectively treat the unique and complex symptomatology of this population. The goal of this article is to provide a basic introduction of FASD to mental health professionals in six key areas: FASD symptoms, diagnostic comorbidity, memory impairments, tips for interacting with individuals who may have FASD, screening and assessment, and treatment.

FASD symptoms

A diverse range of symptoms characterizes FASD.

Executive functioning deficits: Impairments associated with executive functioning are a hallmark deficit of FASD, impacting the majority of individuals affected by these disorders. Executive functioning deficits are often associated with impulsivity, diminished ability to learn from consequences and impairments in planning, verbal reasoning, emotional regulation, memory and learning.

Social skills deficits: Individuals with FASD often have pervasive impairments in the domain of social functioning. Misinterpretation of social cues is not uncommon. This can lead to boundary violation concerns (e.g., inappropriately touching another person), which can in turn result in involvement in the criminal justice system. Such social skill deficits can also increase the individual’s level of vulnerability to manipulation by others and an inability to detect unsafe situations and people.

Attachment problems: Consistent with these deficits in social skills, poor attachment with the primary caregiver is relatively common in children with FASD. Poor attachment with the primary caregiver can increase the likelihood of misdiagnosis in a child. Common misdiagnoses may include attention-based (e.g., attention-deficit/hyperactivity disorder [ADHD]) or behavior-based disorders (e.g., conduct and oppositional defiant disorders). In fact, it is not uncommon for these disorders to co-occur with a diagnosis of FASD. Given that reality, mental health professionals who work with individuals impacted by FASD should familiarize themselves with commonly co-occurring disorders such as those just mentioned.

Adaptive functioning: Adaptive functioning involves an individual’s practical, social and mental capacities to deal with everyday challenges and problems (e.g., personal hygiene, personal finances, navigating social interactions). In light of the executive functioning problems outlined earlier, as well as struggles with processing abstract information and solving problems, individuals with FASD have difficulty in the realm of adaptive functioning. The consequences can range from difficulty maintaining employment to struggles with caring for one’s self. Because of these deficits in adaptive functioning, a high percentage of individuals with FASD are dependent on the support of family and social services.

Learning problems: One of the key issues related to adaptive functioning among individuals with FASD is difficulty learning from past experiences. Furthermore, individuals with FASD often struggle to use past experience to prospectively avoid dangerous people and situations. These deficits are exacerbated by impulsivity and an inability to think strategically about decisions. Hence, FASD affects an individual’s ability to understand society’s norms and to behave within those norms.

Diagnostic comorbidity

Increasing the likelihood of negative short- and long-term outcomes, individuals with FASD often have co-occurring disorders and other issues.

Diagnostic comorbidity: It has been estimated that the overwhelming majority of individuals with FASD experience comorbid psychiatric conditions. ADHD is the most prevalent comorbid disorder observed among those affected by FASD. Other disorders frequently observed among adolescents with FASD include conduct disorder and oppositional defiant disorder. Finally, individuals with FASD are also at an elevated risk to abuse substances later in life.

Physical complications: A number of physiological symptoms can suggest the possibility of FASD. For example, prenatal alcohol exposure can result in cardiovascular (e.g., septal defects, hypoplastic pulmonary arteries) and kidney (e.g., pyelonephritis, hydronephrosis, hypoplasia) irregularities. Prenatal alcohol exposure has also been linked to orthopedic irregularities in the structure of bones in the upper body (e.g., radioulnar synostosis), fingers and toes (e.g., camptodactyly, brachydactyly, clinodactyly).

Other brain-based injuries: Individuals with FASD may be more prone to traumatic brain injuries throughout the life span. This could contribute to the underdiagnosis and misdiagnosis of FASD. Furthermore, these traumatic brain injuries may exacerbate other secondary conditions, including ADHD, executive functioning impairments, mental health and substance use disorders, and so on.

Other life adversities: As a function of FASD and these other co-occurring disorders and impairments, individuals with FASD are disproportionately likely to be afflicted with problematic life experiences. For example, individuals with FASD often come from unstable homes, experience neglect and abuse (verbal, physical or sexual), and are exposed to substance use, mental illness and criminal justice involvement by their families and household members. As such, mental health professionals should view these co-occurring disorders and other negative life experiences as potential indicators of FASD, necessitating a need for further assessment and evaluation.

Memory

One of the most devastating cognitive deficits of FASD is short- and long-term memory impairment.

Poor memory: Individuals with FASD typically have problems associated with memory. In some instances, these issues can lead to over- and underendorsement of symptoms, contributing to missed and misdiagnosis. In other instances, these individuals can struggle with retrieving and communicating their memories, contributing to issues such as suggestibility, confabulation, fabricating stories and incorrect storytelling.

Suggestibility: The suggestibility of individuals with FASD can be detrimental in at least two ways. First, these individuals may be manipulated into participating in criminal activity by peers. Second, these individuals may be prone to falsely confessing to criminal activities that they did not commit. As such, mental health professionals must take care to verify the accuracy of statements made by individuals with FASD. Mental health professionals should also take the topic of suggestibility into account when phrasing and asking questions during the initial intake and diagnostic assessment process.

Confabulation: FASD and other disorders characterized by memory deficits often co-occur with confabulation issues. Confabulation occurs when new memories are created by filling gaps in recall with one’s real memories, imagination or environmental cues. Incidents of confabulation may occur spontaneously or be prompted. For example, confabulation is particularly likely in situations in which professionals ask leading questions or pressure the interviewee. As such, confabulation can contribute to inaccurate self-reports by the client, resulting in possible misdiagnosis and the development of an ineffective treatment plan.

Interacting with clients

The pervasive symptoms of FASD have important implications for how mental health professionals should interact with clients who may have these disorders.

Importance of simplicity: Individuals with FASD tend to perform better when tackling one task at a time. This is especially true of tasks that do not involve reliance on previous experience to complete. Multistep and complex questioning can result in individuals with FASD shutting down emotionally or responding with factually incorrect or incomplete responses. Mental health professionals should take this into account when screening, assessing and developing treatment plans for this population.

Superficial talkativeness: The propensity for individuals diagnosed with FASD to be charming and talkative may lead mental health professionals to overestimate their level of competence and comprehension of treatment goals. It is important for clinicians to have these individuals demonstrate understanding and knowledge of the question being asked by explaining it back to the professional in their own words. Overuse of yes-or-no questioning can also mask the individual’s true level of impairment.

Misinterpretation of callousness: In some cases, behaviors resulting from FASD symptoms might be mistaken as a choice rather than as a result of the disorders. The social and cognitive deficits of individuals with FASD can contribute to problematic behaviors being misinterpreted as premeditated or manipulative. In fact, many of the behaviors exhibited by individuals with FASD are the direct result of deficits caused by prenatal alcohol exposure.

Screening and assessment

The combination of nuanced symptomatology and diagnostic comorbidity makes the screening and diagnosis process for FASD difficult.

Diagnostic terminology: FASD is an all-encompassing term that includes fetal alcohol syndrome, partial fetal alcohol syndrome, alcohol-related neurodevelopmental disorder and alcohol-related birth defects. In the fifth edition of the Diagnostic and Statistical Manual of Mental Health Disorders (DSM), neurodevelopmental disorder-associated with prenatal alcohol exposure has been added as a condition for further study. This is the first appearance of FASD-related symptoms in the DSM, which means mental health professionals can now diagnose prenatal alcohol exposure.

Missed and misdiagnosis: Missed and misdiagnoses of FASD may explain, at least in part, the limited awareness of the disorders among medical and mental health professionals. A lack of systematic education and training on FASD contributes to this situation. As a result, many children, youth and adults go unidentified and are subsequently unable to take advantage of advanced medical and psychological treatment and services that could render a better quality of life.

Detection difficulties: Another factor that likely contributes to the missed and misdiagnoses of FASD is the fact that these disorders are difficult to identify. Why is that? Visible indicators such as morphological signs are not always present, whereas cognitive deficits are difficult to detect using standardized intelligence measures. This is problematic because individuals with FASD who present with no outward signs of facial feature abnormalities can still possess severe neurobehavioral deficits. In fact, diagnosis of prenatal alcohol exposure becomes increasingly difficult as children grow into adolescence and adulthood. Specifically, many of the physical features of prenatal alcohol exposure fade as children grow physically. Furthermore, the availability of birth mothers and records decrease with time. As a result, many professionals and researchers have called FASD a “hidden disability.”

Importance of identification: Assessment and identification of FASD are essential because the likelihood of impairment related to alcohol exposure increases significantly with each subsequent pregnancy. Identification of these disorders in a first pregnancy provides a viable point of intervention to help prevent alcohol use in future pregnancies.

Treatment

Even in cases in which the individual has been accurately diagnosed with FASD, treatment can be challenging.

Problems with cognitive-based treatments: Individuals with FASD have cognitive (e.g., memory, understanding cause-and-effect), social (e.g., comprehending social cues) and adaptive (e.g., problem-solving ability, generalizing skills) deficits that complicate their participation in cognitive-based treatment. Likewise, insight-based therapy approaches are not encouraged with this population. Therapeutic approaches that incorporate modeling, coaching, teaching and skill building may be most effective with these individuals.

Problems with treatment adherence: Individuals with FASD may benefit more from treatment in structured residential facilities than in outpatient facilities because of the cognitive deficits associated with FASD. Should an outpatient program be the only option, odds of treatment success may be improved by maximizing program structure and tailoring treatment plans to the individual.

Conclusion

The disorders under the FASD umbrella are complex and lifelong. They are characterized by an array of adaptive, behavioral, emotional, executive, physical and social impairments. Considering the prevalence rates of FASD in the United States, it is highly likely that mental health professionals will come into frequent contact with individuals impacted by these disorders. Unfortunately, these disorders often go unrecognized and undiagnosed by many mental health professionals.

Other than simply improving identification of individuals with FASD, another essential step for mental health professionals is to better understand the various challenges and deficits faced by this population on a daily basis. To combat the status quo, mental health professionals are encouraged to seek training on this complex topic and consult with FASD experts when necessary. Taking this path forward will minimize the likelihood of negative short- and long-term outcomes for this population.

 

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Jerrod Brown is the treatment director for Pathways Counseling Center Inc., which provides programs and services benefiting individuals affected by mental illness and addictions. He is also the founder and CEO of the American Institute for the Advancement of Forensic Studies and the editor-in-chief of Forensic Scholars Today. He holds graduate certificates in autism spectrum disorder, other health disabilities and traumatic brain injuries, and is certified as a fetal alcohol spectrum disorders trainer. Contact him at Jerrod01234Brown@live.com.

 

Letters to the editor: ct@counseling.org

Counseling Today reviews unsolicited articles written by American Counseling Association members. To access writing guidelines and tips for having your article accepted for publication, go to ct.counseling.org/feedback.

 

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Opinions expressed and statements made in articles appearing on CT Online should not be assumed to represent the opinions of the editors or policies of the American Counseling Association.

Empty crib, broken heart

By Bethany Bray September 22, 2015

This past summer, Facebook CEO Mark Zuckerberg and his wife, pediatrician Priscilla Chan, announced that they are expecting a baby. This celebrity baby news grabbed headlines for a different reason than most, however. The couple’s announcement included a candid acknowledgment that they had been trying to have a baby for several years and had suffered three miscarriages along the way.

“It’s a lonely experience,” Zuckerberg wrote in a July Facebook post. “Most people don’t discuss miscarriages because you worry your problems will distance you or reflect upon you — as if you’re defective or did something to cause this. So you struggle on your own. … We hope that sharing our Empty-crib-broken-heartexperience will give more people the same hope we felt and will help more people feel comfortable sharing their stories as well.”

Zuckerberg and Chan’s post resonated with millions of people (witness the post’s 1.7 million “likes,” nearly 112,000 comments and 49,000-plus shares as of the end of August) and helped raise the curtain on some painful yet common issues that are rarely talked about openly.

Although many people who face miscarriage and infertility feel alone or isolated, statistics show the circumstances are much more common than people may think. Miscarriage, defined as the loss of a pregnancy before 20 weeks, occurs in 15 percent of known pregnancies, according to the American Congress of Obstetricians and Gynecologists. The U.S. Centers for Disease Control and Prevention reports that about 12 percent of women ages 15 to 44 have “difficulty getting pregnant or carrying a pregnancy to term,” while an estimated 7.4 million women in that same age bracket have used fertility services.

“Trying to make sense of it all is really, really challenging. The depth of the pain and the challenges you go through are hard to put into words,” says Kristin Douglas, a licensed professional clinical counselor and American Counseling Association member in Kentucky who has personal experience with infertility and multiple miscarriage losses. “You don’t ‘get over’ these kinds of losses. You work through them, but you don’t get over them.”

Mourning what might have been

A person or couple can’t help but think about the future, even if cautiously, after a fertility treatment or positive pregnancy test. Considerations from possible baby names to how the mother might be “showing” by a certain month naturally spring to mind.

“When that is taken away” — either through miscarriage or an unsuccessful fertility treatment — “you’re not grieving the past, you’re grieving what was going to be. You’re grieving the future,” says Valorie Thomas, a licensed marriage and family therapist and licensed mental health counselor in Florida. “With pregnancy loss and infertility, each time it doesn’t happen, you’re grieving … for all the ways you were thinking it was going to be. Helping the client to see that can be eye-opening — acknowledging that it’s real, it’s a loss [and] it’s gut-wrenchingly painful.”

Thomas knows this pain firsthand. She has been pregnant 10 times, but only one — her sixth pregnancy, a now 16-year-old son — was carried full term. Thomas and her husband also have a 7-year-old daughter whom they adopted.

Unlike when other family members, friends or acquaintances die, miscarriage and infertility can leave clients without memories to grieve. Often, people don’t even realize that they have the right to grieve, says Thomas, an ACA member who has a small private practice and is an adjunct professor at Rollins College in Winter Park, Florida. It’s the type of loss “that’s hard to understand,” she says. “You [typically] think of a loss as something that was already here, and you’re grieving it [no longer being here].”

With fertility treatment, she says, “You get the call from the doctors saying, ‘The pregnancy test was negative, we’ll see you next month,’ and they hang up,” leaving the individual or couple reeling with a flood of emotions, from anger and frustration to sadness and embarrassment.

Clients who are struggling with infertility or grieving a miscarriage can present with a range of issues in a counselor’s office. Depression, anxiety and intense stress are very common, Douglas says, as are feelings of guilt, anger, disappointment, frustration and fear. It is also possible for these clients to wrestle with trauma symptoms associated with their loss, she says.

It is not uncommon for couples or individuals to have experienced both infertility and miscarriage. Miscarriage, or “the inability to carry a pregnancy to term,” may be part of the infertility experience, Thomas says. But even when there is no overlap, couples who experience a miscarriage may share some of the same emotional responses as those who are having difficulty conceiving, she says, including a sense of helplessness, desperation and loss of control.

Because miscarriage and infertility can be taboo subjects, clients may not realize that they can — and should — acknowledge a pregnancy loss. For example, Thomas says, perhaps a client feels “down” every autumn but doesn’t know why. It could be that she experienced a miscarriage years or even decades ago during the fall that she never processed.

Professional counselors can provide help and support in a variety of ways to those who have experienced infertility or miscarriage. This might include helping clients work through the pain and stress of disappointment, self-doubt and even family or cultural expectations. It might also encompass encouraging these clients to practice self-care and teaching them coping mechanisms to help them get through the bad days.

Above all, counselors must familiarize themselves with infertility and reproductive issues if they are going to be sensitive and effective helpers for these clients, says Ebru Buluc-Halper, a mental health counseling graduate student at Pace University who runs a support group for couples and individuals going through infertility.

“If [a counselor] doesn’t know what they’re talking about, it’s a huge turnoff,” says Buluc-Halper, an ACA member who led a poster session on multicultural considerations in infertility counseling at ACA’s 2015 Conference & Expo in Orlando, Florida. She has friends “who were very frustrated by [a therapist’s] lack of knowledge and were turned off from therapy because they wanted to be understood. It doesn’t happen to everyone, but it does happen.”

“People want to be heard and want someone to talk to,” says Buluc-Halper, who has personal experience with miscarriage and fertility treatment. “They are deeply in need of empathy and understanding, which they’re not getting from the people around them, sometimes even from their partners.”

Counselors who don’t understand miscarriage and infertility — at the very least possessing a basic knowledge of the processes, terminology and biological factors surrounding these issues — risk reinjuring and alienating clients, agrees Douglas, an assistant professor of counselor education and coordinator of the counseling clinic at Murray State University in Kentucky. People who disclose their miscarriage or infertility struggles are often subject to the well-meaning but hurtful comments and assumptions of others, she says. Among the statements that are common: “If you just relax and de-stress, you’ll get pregnant”; “Just give it time, it will happen”; “At least you weren’t that far along to get attached”; “Maybe you should just adopt”; and “Maybe it’s not in your cards.” Comments such as these are often completely untrue and very upsetting to the receiver, says Douglas, who wrote her doctoral dissertation on miscarriage at the University of Wyoming.

“The last thing a person wants is to talk to a counselor who is going to say some insensitive and hurtful things in response to what that person experienced,” Douglas says. “There is a fear of what a counselor might say. Are they going to say the insensitive things that everyone else says? Things that are so hurtful or that minimize the loss?”

Handle with care

One of the most important things counselors can keep in mind is that no two clients’ experiences are the same, says Courtney Armstrong, an ACA member with a private practice in Chattanooga, Tennessee. Each client will attach a different meaning to what she or he is going through.

“Everyone’s experience with infertility is different. You can’t just make assumptions,” says Armstrong, a licensed professional counselor who accepts client referrals from a fertility clinic in her area. “You have to respect that it’s a process for people to come to terms with their infertility. It’s not something you can help them reason their way out of. You have to treat each person individually because every person is going to respond in a different way.”

Counseling and therapy must also be individualized in cases of miscarriage. Douglas says she finds it much easier to talk about her first miscarriage, which involved triplets, than her second, which was a single baby. “People would never compare the death of a sibling or a parent to that of an uncle or other relative,” Douglas says, “but somehow, [people] just lump all the miscarriages together. Each failed fertility treatment is not the same either.”

There is no one-size-fits-all way to address a client’s infertility or miscarriage in counseling, agrees Thomas. “It’s important that the counselor be aware [of] spirituality and traditions and culture. Your clients are bringing all of that to you,” she says. “You can’t just [use] a cookie-cutter approach.”

Thomas terms miscarriage a “silent sorrow,” saying that the loss typically goes unacknowledged by society. Too often, she says, the message that women who have experienced miscarriage receive is: “Get over it. You’ll be fine. Don’t worry about it.”

“But depending on your spiritual beliefs, depending on what that meant to you at the time, what it signified, what does family mean to you, what does creating a family [mean to you], how bad you wanted it — all those things play into your reaction,” Thomas says.

Paying careful attention to the language the client uses can provide counselors clues about how the person is processing the loss, she says. For example, does the client say, “I was 10 weeks pregnant, and I lost the baby,” or does she use another word? If the client or couple isn’t ready to use the word “baby,” the counselor shouldn’t refer to the pregnancy that way either, Thomas advises.

After going through pregnancy loss and several rounds of in vitro fertilization, Armstrong and her husband made the choice to be child free. Making that conscious decision was empowering, she says. “The choice piece is the really important part — deciding if this is the best and right thing for me,” she explains.

Likewise, Armstrong says, in counseling it can be empowering for clients to find meaning and realize they still have the ability to make choices in an unwanted situation. Wanting to be a parent and wanting to be pregnant are two different things, and helping clients to uncouple those two concepts in their mind can be helpful, she says.

“If they’re going to explore infertility treatment, adoption or other options, is this about having a child or having a child that’s biologically connected to you? The most important thing is that they feel they have the freedom to make a choice,” she says.

Thomas’ experience with infertility caused her to rethink the assumptions she’d held growing up in a Catholic family with nine brothers and sisters. “In my family, it was just assumed we’d all have large families,” she says. “When that didn’t happen for me, I had to revisit [that] and ask myself if I’d be OK if that didn’t happen. Then I came to grips [with the realization] that you can create family in different ways. It was OK that I had other parts of myself to be a whole person. I realized that it may be different for me.”

How to help

Heartbreak can accompany miscarriage and infertility. But so can hope and healing. Here are a few ways counselors can help clients who are processing these experiences.

Storytelling and narrative therapy: Two of the most important things counselors can provide to these clients are a listening ear and empathy. “It’s just so important to listen to their story, really listen to their story,” Thomas says. “Every one of them is so different. Each one has a different journey. Listen compassionately and really be present.”

Douglas recommends inviting clients, but not pressuring them, to talk about their loss experiences, such as where they were and how they felt when they learned they were pregnant, what it was like to be pregnant, what happened during their miscarriage and what feelings they had when they learned their pregnancy was over.

“Just like with other types of trauma, you want to be sensitive to not retraumatize clients by having them share their story over and over again,” she says. “But at the same time, if clients feel it would be healing to share their story, invite them to share it and process it as many times as they feel they need to. It can be healing to remember, to talk it through, to process these things with other people, especially if clients did not feel their loss was acknowledged or if they did not have the opportunity to share their story in full with anyone.”

This hit home for Douglas as she wrote the narrative of her first miscarriage for her doctoral dissertation. It was the first time she had written out the entire story, start to finish, she says. Afterward, she read the four-page narrative aloud to her own counselor in a therapy session. “It was such a powerful moment. I just sobbed and sobbed as I read it,” Douglas says. “It was then that I realized I had shared my story with lots of different people but never the whole thing beginning to end — only parts. That was huge for me. I had a further glimpse into the power of story, the power of vulnerability, the power of giving voice to nebulous experiences and the power of validation. Sharing my story beginning to end was emotional but very healing.”

The empty chair approach: This Gestalt technique can be helpful for processing “unfinished business” — something all too common for those who have had a miscarriage, according to Douglas. Counselors might ask clients to speak to an empty chair as if their child who was miscarried were sitting there. Or use the empty chair to have clients speak to whomever they need to — perhaps a co-worker who made an insensitive comment or a doctor who came across as callous, sterile or impersonal. The empty chair can also provide a means for clients to speak to their deity, even venting frustration or another emotion.

“This can be a way to give the client a voice or provide a degree of closure,” Douglas says. “It not only helps clients work through complex feelings as they process lost hopes, dreams and frustrations, but also helps them have an important, needed voice.”

Journaling and letter writing: Writing a letter can provide clients an outlet to tell their miscarried baby that they miss and love the child. Similarly, clients can write themselves a letter from the baby, Thomas says.

“At some point when they’re ready, have the client write a letter from the baby to the parents. They can say, ‘I’m still here. I love you.’ That’s very healing, but it shouldn’t be done right away,” Thomas warns. “It takes time. [The parents] have to be ready for that.”

Creating a journal can also help clients process a pregnancy loss by encouraging them to explore the loss and what it meant to them, Thomas says. Each experience will be different, whether it is the client’s first miscarriage or third, whether the client already has children at home, whether it was an unplanned pregnancy and so on.

Expressive arts and other creative therapies: Douglas displayed copies of some of the pastel chalk drawings she created as part of her own way of coping with her miscarriage loss when she co-presented a session at the ACA Conference in Charlotte, North Carolina, in 2009.

She advises counselors to pay attention to their clients’ creative interests and incorporate those interests into the therapeutic process, if appropriate. For example, if the client likes to garden, planting a tree in honor of a child who was miscarried might be healing for the client. If the client has a flair for design, perhaps she could design a bracelet with charms that represent the pregnancy. Douglas finds that expressive arts or other creative therapies not only help clients work through challenges associated with their loss, but also assist in making the intangible tangible.

Douglas had one client who enjoyed scrapbooking. Creating scrapbook pages became her version of a journal and helped her find meaning in the miscarriage she had suffered. Scrapbooks or other creative projects can include ultrasound images, hospital bracelets, photos of baby gifts that were received or a narrative written by the client about what it felt like to find out she was pregnant.

“One of the challenges of miscarriage is the intangibility,” Douglas says. “When you have such few items, those ‘artifacts’ such as an ultrasound photo become very important in validating your experience and your loss. You cling to those things.”

Mind-body and wellness approaches: Thomas says mind-body approaches such as yoga, relaxation techniques, meditation, deep breathing, guided imagery and repeated prayer can be helpful to clients who have experienced miscarriage or infertility. In one case, Thomas used guided imagery with a client before her fertility treatment, instructing her to envision that her grandfather, who had passed away, would be with her to support her throughout the procedure.

In addition, encouraging clients to pursue a wellness lifestyle, including eating healthy food, exercising regularly and getting enough sleep, can be helpful, both because of the health benefits provided and because it gives clients a new area of focus. Spending time on healthy cooking, for example, can divert a client’s energy and focus away from frustrated or anxious thoughts. Assure clients that they are working to be “in the best place they can be to ride this roller coaster,” Thomas says. The thought becomes: “I am doing the best I can to make my body healthy so I have a chance of conceiving.”

Encouraging clients in the practice of self-nurturance, such as taking 30 minutes each day to do something they really enjoy, can also help refocus their energy away from the stress of fertility treatments. Thomas instructs clients to think of 10 things that they enjoy doing and that make them happy. Then she asks clients, “How many of these things are you doing? You’re allowed to enjoy things during this time. Look for ways to enjoy yourself.”

Developing signals: Sometimes social situations can be overwhelming for individuals who are going through infertility or who have experienced a miscarriage. Buluc-Halper and Douglas both suggest that counselors have these clients develop a signal to let their partners or trusted friends know when they need to change the subject or take a break during social gatherings.

But clients also need to be realistic about what they can and cannot handle, Buluc-Halper says. “Going through this experience is a good time in your life to put yourself first,” she says. “[When] you’re expected to show up at a dinner or a baby shower and you emotionally, truly, cannot handle it, it’s OK to put yourself first and say, ‘It’s not a good day for me.’ Put yourself in touch with what you’re feeling. You’re in such a fragile state. There are days when you wake up and you know that you can’t go, and others when you are strong enough.”

Externalize the problem: Buluc-Halper suggests that counselors help clients remove the word infertile from their vocabulary. Infertility is not their identity, she explains. “We don’t say, ‘I’m cancer.’ We say, ‘I have cancer,’” she says. “Infertility doesn’t define them. It’s just part of their journey. Finding a way to externalize that does make it easier to go to the dinner, the family gathering, the baby shower, [knowing] this is just part of my journey. Everybody will go through something in their lives, and this [infertility] is one of the things that we just happen to be going through. … Everybody will find some sort of resolution, whatever that may be. As in every experience, there will be a resolution. It might not be the resolution you envision, but you will find some kind of closure.”

The trusted friend: When clients are hesitant to tell family and friends about what they are going through, Buluc-Halper suggests that they pick one person, such as their mother or a favorite sister or cousin, to confide in. Ideally that person should be able to serve as a buffer when awkward or painful subjects or questions are raised at family or social gatherings. In Douglas’ case, she had a trusted friend who would intercept baby shower invitations for her, knowing she wasn’t ready to face such a baby-focused event.

A cultural perspective: A client’s cultural background can play a huge role in how that person views and deals with miscarriage or infertility. At the same time, counselors should never assume that individual clients will experience these issues within the cultural norms of their respective backgrounds, Buluc-Halper says. Doing a cultural genogram with clients can help counselors get a better idea of the role that cultural background plays in a person’s life, she says.

Thomas agrees, noting that she asks clients about their spirituality and family of origin at intake.

“The very, very important part for all counselors to remember when working with infertility clients from a cultural perspective is to be very aware of their own cultural biases,” Buluc-Halper says. “Be cognizant not to distort the couple’s experience based on how you assume that culture perceives infertility in terms of its ideologies, in terms of its experiences or in terms of the resolution. … They might not be experiencing infertility the same way you might expect them to based on their cultural background.”

Taking a break: For clients who are going through fertility treatments, each stage brings a series of decisions and procedures that can be exhausting, Armstrong says. Counselors can offer their clients reassurance that if they decide to take a break from treatments, it doesn’t mean they are giving up,Empty-crib-broken-heart-small she says. “Maybe take a month off, regroup and then go on to the next stage [of fertility treatment]. Tell them, ‘You’re not giving up. You’re just backing off for a minute to get some perspective and come back,’” Armstrong says.

Internet forums: Numerous websites and online forums are available for people going through infertility and reproductive issues. Although these sites provide helpful information and a way to connect with and find support from other people facing similar issues, the sites can also cause clients to spend more time focusing on issues that cause them anxiety, stress or sadness.

In Armstrong’s case, she stopped visiting online forums while she was undergoing in vitro fertilization because they were provoking her anxiety. Although such forums can offer support in many situations, Armstrong found they could also act as a platform to swap “horror stories” or misinformation. “Some people find them very helpful, while others find it makes them feel worse,” she says. “It helps them know that they’re not alone, but there can also be a risk because it can make them more worried.”

If online forums don’t appear to be serving clients’ best interests, counselors can suggest that they take a break and attend in-person support groups instead. Support groups, whether online or in person, can play an integral role in breaking through the isolation that often accompanies experiences of miscarriage and infertility, Buluc-Halper adds.

Grief: Douglas theorizes that women grieve miscarriage loss developmentally. “This is a life that would have been,” she explains, “and you will most likely grieve in different ways and different stages for what that child would have been like [as it aged]” — such as when the child would have started walking and talking or when the child would have started kindergarten. Missed milestones may be extra emotional as time passes. As a result, grief may resurface over and over again, but in different ways, complicating the healing process, Douglas says.

Anniversaries: In cases of miscarriage, multiple dates can be painful, such as the day the couple found out they were expecting, the baby’s due date, the date they lost the pregnancy and so on. Counselors might suggest that clients engage in extra self-care on those anniversaries or commemorate the dates with rituals such as playing a meaningful song, lighting a candle or sending up a helium balloon with a letter inside to their miscarried child, Douglas says.

Control: One of the most difficult aspects of dealing with infertility or miscarriage for clients is accepting that what has happened or is happening is largely out of their control. “A lot of people blame themselves and think, ‘I’m not doing enough or could be doing things differently,’” Armstrong says.

In cases of infertility, some clients will do things to try to take control of the situation, such as cutting gluten out of their diets or taking their temperature daily. Counselors need to be sensitive to the fact that these clients may have devoted a lot of time and energy to finding different methods that might increase their chances of conception, Armstrong says. If the methods are giving them more confidence or security about their situation, that can be good, Armstrong says, but if the methods are only serving to make clients blame themselves further, that can be harmful. “Be mindful and aware of helping clients find what makes sense and what may not be influencing whether or not they get pregnant,” she says.

In cases of miscarriage, Armstrong says she most often points to biology with clients. The human body is designed to abort a pregnancy that could be harmful, she says. “I really try and bring it back [to the fact] that we don’t understand all the reasons why [women miscarry], but it’s purely biological,” she says.

Offering hope: Individuals receive very straightforward — and sometimes upsetting — information from medical doctors about their infertility, including the slim percentage they may have of getting pregnant or the complications that could happen as a result, Thomas says.

On the other side of that coin, a counselor’s focus on the positive can provide clients an antidote to discouragement, she says. “Hope is such a big factor. … Put [clients] back in charge of their life,” she advises. “Offer hope that there are some coping strategies [available and that the client is] a normal person responding to the struggles of creating a family. [Tell them], ‘You need to give yourself permission to be angry and cry. … Keep the faith. If you want a family, it will happen. It may just not be the way you envisioned.’”

Couples: It takes two

Spouses or significant others will naturally deal with miscarriage or infertility in different ways and process things at different rates. In fact, it is common for a counselor to see relationship partners who are in two very different states emotionally, Armstrong says. One partner may have already accepted what has happened, while the other is still in a bargaining stage, thinking, “Surely there is something we can do” to change the situation, Armstrong says.

Counselors can help by educating couples that the grief that accompanies a miscarriage or infertility will come in waves and that each partner is likely to be at a different point along the grief spectrum. Once couples understand that it is natural to feel differently about what they are experiencing, they often express a sense of solace, Armstrong says.

“They’re relieved [because] they don’t see themselves in conflict, just at different stages in the process. Then they can understand and be more patient with each other,” she says. “Help them understand that they’re in different stages and how to communicate and best support each other” wherever they are in the process.

Differences in spirituality level or religious background can threaten to divide a couple during a miscarriage, notes Thomas. For example, one partner may consider a miscarried baby to have a soul, while the other does not.

“Spirituality can be very healing or create a lot of conflict if they’re coming from different perspectives,” Thomas says. “One may feel it’s ridiculous to grieve, while the other feels it’s necessary. Work with them to be respectful of each [other’s perspective].”

It can be helpful for counselors to suggest that a female client bring her partner to medical and therapy appointments when possible, Buluc-Halper says. It is important that the client learn to rely on her partner for support throughout the entire process, not just during times of extreme anxiety, she points out.

“Partners don’t always understand how all-consuming this [infertility] experience is,” Buluc-Halper says. “You’re the one that is doing blood work, and your arm is purple from all the injections. It’s not to diminish the male experience of this, but they don’t always understand why the female can’t really detach herself from the issue.”

As important as empathy is for counselors, it is equally important to teach that skill to couples, Thomas says. She often has couples hold hands as they tell each other what the miscarriage journey has been like for them. The counselor is there to assure both partners that whatever they are feeling is valid, real and quite possibly intense, Thomas says.

“Give them a safe place to explore what this has been like for them — sometimes for the first time,” Thomas says. “What does that loss mean to them? [They are] really seeing each other describe what happened and how they’re feeling right now. Because they grieve differently, it’s important to validate their experience and [explain] that it may trigger some previous losses and intensity that might scare them.”

“With infertility, they can get stuck and not want to move on if they’ve had a pregnancy loss and not really grieved it,” she says. “They need to slow down and experience what they need to experience before they go on to the next step.”

Breaking the silence

By inviting conversations about miscarriage and infertility, counselors can play an important role in removing the stigma and isolation that surround these issues. Douglas cites the example of breast cancer, a once-taboo subject that is now openly talked about and advocated for with well-publicized campaigns and fundraisers.

“Invite the conversation and break the silence,” Douglas says. “Help give women and men permission to grieve miscarriage losses and give voice to those losses. Give them a safe, nonjudgmental place to share their stories. Invite those stories. Take time to listen to those stories over and over again, as many times as people need.”

 

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For more information

  • Valorie Thomas will be presenting two sessions on these topics at the 2016 ACA Conference & Expo in Montréal. Thomas’ sessions are titled “Creating Rituals for Couples Experiencing Early Pregnancy Loss” and “A Mind/Body Approach for Struggling With Infertility.” See counseling.org/conference for session and registration information.
  • Oct. 15 is Pregnancy and Infant Loss Remembrance Day. Visit october15th.com for information and events, such as remembrance walks, listed by state.
  • The National Infertility Association (resolve.org) offers a wealth of information and resources, including online support communities and a hotline, 1-866-NOTALONE.
  • The American Pregnancy Association has resources on infertility and pregnancy loss at its website: americanpregnancy.org
  • An ACA Practice Brief titled “Counseling People Experiencing Infertility,” by Donna M. Gibson and Jennifer M. Gerlach, is available to ACA members on counseling.org. (Practice Briefs are listed at the Center for Counseling Practice, Policy and Research page, which is under the “Knowledge Center” tab on the homepage.)

 

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Bibliotherapy resources for clients and practitioners

  • Jaffe, Janet and Diamond, Martha (2011). Reproductive Trauma: Psychotherapy with Infertility and Pregnancy Loss Clients
  • Kohn, I. and Moffit, P. L. (2000). A silent sorrow: Pregnancy loss: Guidance and support for you and your family. New York: Routledge. Doubleday Dell Publishing Group, Inc.
  • Kushner, H. (1981). When bad things happen to good people. New York: Avon Books.
  • Domar, A. D. and Kelly, A. L. (2004). Conquering infertility: Dr. Alice Domar’s mind/body guide to enhancing fertility and coping with infertility. New York: Penguin Books.
  • Jones, C. F. (2009). Hopeful heart, Peaceful mind: Managing Fertility. Fraser Davis Press.

 

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Bethany Bray is a staff writer and social media coordinator for Counseling Today. Contact her at bbray@counseling.org.

Letters to the editor: ct@counseling.org

And baby makes three

By Stacy Notaras Murphy April 24, 2014

babyI remember the first client I told about my pregnancy. I was starting to show and realized I couldn’t put the news off any longer. Dawn (client names have been changed throughout to protect confidentiality) was the one person on my caseload I was nervous about telling because she was going through fertility treatments to become pregnant herself. In my anxious state, I made the impatient decision to start my notifications with her rather than learning from and building on my experiences in telling other clients.

“You might have some feelings about this, but I’m pregnant,” I blurted out at the end of a session. Dawn paused, smiled and said, “Well, thank you,” and then she left. Though we kept working together, we never really discussed her feelings about how I delivered the news of my pregnancy to her. I look back on that with such regret. I wish I had had more of a strategy in that moment.

I was meeting weekly at the time (and still to this day) with a peer supervision group made up of therapists who are mothers. Our experiences of telling clients about our pregnancies are all somewhat similar, and they include both hits and misses. We all recall times when we used the information to good therapeutic effect. We also recall instances in which the news derailed what might have happened under other circumstances.

According to the U.S. Department of Labor, women make up approximately 70 percent of all counselors. In addition, nearly three-quarters of ACA’s membership is female. These numbers suggest that it will not be particularly uncommon for clients to work with a counselor who is pregnant during treatment. Although studies and papers on the topic are not plentiful, the subject comes up in wider discussions of transference, countertransference and ethics. Among the questions to consider are when to reveal the pregnancy to clients, how much detail to offer and how to ensure proper client care both leading up to and during maternity leave.

While many clients have little conscious reaction to their counselor’s pregnancy, others have strong feelings that can be named with the counselor or that show up in other ways. One colleague described a client who threw himself into a crisis just before her maternity leave began. In their work, it became clear that he had done this to give her the opportunity to prove her commitment to him — by attending to his needs despite having an infant at home — or to unmask her as the abandoning mother he recalled from his own childhood.

Not all therapeutic alliances are deeply challenged by the counselor’s pregnancy, but most will experience some impact, if for no other reason than it necessitates a break in the counseling process. Preparation, awareness and collegial support are indispensible tools during this time.

Moment of truth

Patti Anderson is an ACA member and licensed professional counselor (LPC) in private practice in Washington, D.C. She is also the mother of one school-age son and younger twin daughters. During her first pregnancy, Anderson was a full-time counselor at a university. She left that position after her maternity leave ended and launched her own private practice. Her second pregnancy happened five years into building that business. “I noticed I felt more pressure and anxiety with the second pregnancy in regard to finances, clients and the business’s ability to withstand my maternity leave,” she reflects.

Anderson says a vital support was having supervisors who were available for help and quick consultation. “For me, that availability was key to being able to quickly check in to manage countertransference and unique client issues,” she says, adding that her second pregnancy had more emotional components. “It was a real balancing act between what’s best for my family, what’s best for my clients and what’s best for the business. As you can imagine, sometimes those things clash, and sometimes the problems, solutions or truth of the situation were unconscious to me, but my supervisor really helped me tease them out.”

Once, during a session with a long-term client, Anderson was overcome with morning sickness. Because she was only about four weeks along at the time, she had not planned to tell anyone about the pregnancy for several more weeks. “[The client] noticed that I didn’t look well,” Anderson says. “She has good boundaries and didn’t ask what it was, but I could tell she was worried. I was scared to tell anyone yet, so I let her leave the office with the ambiguity of what was wrong hanging out there. Later, I decided to call her and explain the situation. She was really relieved, as she thought I had cancer, and appreciated me following up with her.”

That experience reminded Anderson that clients can be forgiving of our mistakes, and that those times often serve to deepen the work that counselors do. “The best lesson I learned was to treat each client individually, mindfully tell them and talk with them about it when it [was] appropriate for them within reason,” she says. For some clients, simply knowing her due date was enough detail, and Anderson notes that limiting the information about her pregnancy helped demonstrate good boundaries for certain clients. Still, other clients had specific questions about how her work schedule might change after delivery.

Laura Jessup is a counseling resident and ACA member working as a therapeutic day treatment specialist at a middle school in Manassas Park, Va. At the time of our interview, she was pregnant with her first child and had just revealed this news to her caseload of five adolescent clients.

Having recently told teachers and staff at the school, Jessup wanted to tell her clients in person before they heard it elsewhere.

“I thought about the word choice I would use with each of them and particularly about how I would avoid putting too much of the focus on me during this part of the session,” she says. “Even though it was my news and experience, I wanted to keep the focus of the session about them.” She notes that she wanted to be able to talk to each of the adolescents about how her pregnancy would affect them, help process their individual reactions and answer any questions they might have.

Jessup says she didn’t receive any advice from her supervisor about how to announce her pregnancy in the counseling room. “Truthfully,” she says, “I did not think to consult any reading materials or articles. I briefly consulted with a colleague regarding if I should sit down each of my clients and share with them the news or just wait for them to find out eventually from others. She helped confirm my initial instinct that I should tell them directly.”

Traversing transference

The reactions Jessup received were mixed, but one stood out. Jessup had worked for more than a year with Cara, a 14-year-old female. After being told the news, the adolescent’s first statement was, “Well, what’s going to happen to me? Who’s going to be my counselor?”

Jessup knew heading in that she was unlikely to receive the socially appropriate “congratulations” response from such a young person. In fact, Cara’s egocentric, developmentally appropriate reaction confirmed Jessup’s choice to reveal the pregnancy to her clients directly. By being patient and interested in Cara’s own experience of the news, Jessup learned even more about the adolescent’s history and interior world.

Cara “went on to elaborate about how one of her favorite teachers had just recently left for maternity leave, and she was experiencing some conflicts with the substitute teacher who had replaced her,” Jessup says. She tried to alleviate some of Cara’s concerns by explaining that she would be on maternity leave only during the summer break. “She expressed some relief but then reminded me that pregnancies don’t always go as planned and that I might have to be on bed rest or have to leave work earlier than expected,’” Jessup says. The two have continued to process the experience, which has ended up revealing new details about how several of Cara’s family members have experienced miscarriages and complicated pregnancies.

Sometimes transference issues are more hidden, as in Cara’s case, while others are right at the surface. Anderson worked with a woman, Tanya, who had lost a baby at 20 weeks. “As I got more and more pregnant, she starting reexperiencing the trauma, and we used those sessions to really provide her with a safe space to talk about the difficult emotions coming up for her around my pregnancy,” says Anderson, who also worked closely with Tanya’s psychiatrist to ensure she had another outlet for processing her feelings.

Timing is everything (to new clients)

Once the word is out about a counselor’s pregnancy, she also must consider what impact that might have on any new clients she takes on before her due date. W.E. Wang, an LPC and ACA member in Fairfax, Va., is now a stay-at-home mother. Before having her child, Wang worked in a partial hospitalization program where she led groups and counseled individuals for an average of three months at a time.

Wang says conscious consultation with co-workers and supervisors was key to getting her ready to talk about her pregnancy with clients. She prepared for those discussions with clients by thinking through the details she wanted to share — such as the starting date of her maternity leave — and those that she wanted to keep private. “The most important advice that I received from my colleagues was that I needed to be aware of my needs,” Wang says. She notes that her colleagues and supervisors encouraged her to pay attention to her own self-care and to set boundaries about whether she wanted to publicly share the child’s gender.

“My clients were surprisingly accepting of the news,” Wang recalls. “Most reactions were related to anxiety on how the pregnancy might affect their treatment. I did start treating a few clients midpregnancy, where it was obvious to them. One client in particular was very guarded, even skeptical, about my ability to work with her since the presenting problem was related to anger outbursts and difficulty coping with mood swings.”

Wang explained that the client, Mary, a married woman without children, first arrived at a group session and was the only new member present. When Mary recognized that Wang was pregnant, her facial expressions revealed surprise and agitation. “She proceeded to share that she [could not] allow herself to be angry with a pregnant person. Therefore,” Wang says, “she worried that she [could not] be completely open and honest during treatment.” Wang explained that she worked as part of a treatment team made up of several professionals who were available to help Mary.

Together, Wang and Mary worked to create a plan in case Mary felt her anger escalating, such as removing herself from the situation or asking for support from another team member. Wang also took the opportunity to explain that she worked to keep her treatment process transparent and that there would be plenty of room to discuss the pregnancy if Mary ever had anything to process. “Throughout treatment, we worked on grounding skills and increasing awareness of her emotions,” Wang says. “She did not appear to have any other concerns relating to my pregnancy for the rest of the time I worked with her.”

In contrast to those working in agency settings, many counselors in private practice often set a date when they will stop taking on new clients. I recall thinking it would be fine to do an intake in my sixth month of my first pregnancy, but when time came for my maternity leave, I regretted having to cease working with that client after what felt like a short time together. Rather than set her up with a support network to get through my time away, we decided together to transfer her case to a colleague. During my second pregnancy, I was much more conservative about accepting new clients after the third month and made sure to disclose this information with every new referral that came in.

Anderson also chose the “open book” route and allowed new referrals to assess their own personal comfort levels working with someone about to take a leave of absence. “I had a couple of people who did not return after I had the babies. I attempted to follow up with them to make sure they found someone else. I felt like I did everything I could to provide them a safe space to handle this transition, but at the time,” she acknowledges, “it felt more personal, like I did something wrong.”

“My supervisor helped me really take a look at those pieces and work through them,” she says. “I also had a few who canceled our first appointment upon my return. I felt like I knew what that was about for many. It was good material and helped clients uncover abandonment and anger issues. It also gave me a look at how they operate with others in their lives.”

Anderson advises counselors to consider their own personal style of connecting with their clients and to use that style to help clients process the new information about the pregnancy. “It helped so much when I moved from seeing the process as more of a policy or procedural issue to authentically, openly incorporating it into my therapy,” she says.

Transition planning

ACA member and recent counseling graduate Renee Rivera is working toward licensure in New Jersey. She was engaging in individual therapy when her own counselor got pregnant. One day, Rivera’s counselor sent her a text message canceling an appointment because she was not feeling well.

“I responded that I didn’t know she had been sick and hoped she felt better, at which point she [texted back] that she wasn’t sick, she was pregnant,” Rivera says, adding that they had been working together weekly for about eight months. “I received a phone call the following week from a new therapist informing me that [Rivera’s counselor] was on maternity leave and that she would be taking over my sessions. When I showed up for the session a few weeks later, I was informed that the new therapist was no longer with the group, and I would be seeing someone else [new] again.”

Reflecting on the experience as a client, Rivera found the entire situation odd and somewhat overwhelming. Considering the experience as a trained counselor, she says the circumstances were poorly managed. “I respect not immediately disclosing the pregnancy, especially if you aren’t planning on going on maternity leave immediately and feel you have time to broach the topic later,” she says, “but to be told via text message while canceling an appointment feels like a boundary issue. It was almost like having a conversation with a friend, which is not what I expect when talking to my therapist.”

“Additionally,” she continues, “I felt like the team did not have a proper plan to deal with my therapist’s maternity leave. When the interim solution they adopted did not work out, I was never informed and, as a result, ended up not having an appointment for about a month, at which point the mix-up and other issues related to me having to switch therapists were never addressed. Although I ultimately handled the transition well, I can imagine that other clients may have had a more difficult time with the situation and ultimate adjustment period.”

Having lived through this series of therapeutic missteps, Rivera recommends that counselors have a transition plan and seek to include colleagues and other staff members in that strategy, if appropriate. “Depending on how long you may be on maternity leave, a client could be significantly impacted as a result of the pregnancy,” she says. “Being sure that they are prepared to make the adjustment to either not seeing you for an extended period of time or meeting with a new therapist will make the transition that much easier, especially for clients who may struggle with change and transition.”

Jessup agrees that counselors ought to take the time to create a transition plan for each client and discuss that plan at the time they reveal news of the pregnancy to the client. “Having a plan in place and being able to verbalize it to the client early on also demonstrates to the client that the counselor is considerate of his [or] her needs and is working to ensure that they continue to receive quality treatment,” she says.

Use it or lose the chance

Although it’s a disruption to business as usual, a counselor’s pregnancy can become a conduit for new insights and a deepening of the therapeutic alliance. One of my clients once reflected that seeing me, then at age 33, change physically into a mother actually challenged her long-held, biased expectations about her own mother’s ability to parent her because she had her as a teenager.

Similarly, Heather Tustison, an ACA member in Boise, Idaho, is approaching her first pregnancy as an opportunity to normalize pregnancy as part of the general human experience. Tustison serves as a clinical supervisor at her own private practice and training facility, where she sees an average of 20 clients per week and supervises four interns. At the time of our interview, she noted she had been unable to find many materials about how to deal with client issues and pregnancy. As such, she consulted with colleagues and decided to start disclosing her condition to clients at the four-month mark.

Her clients’ reactions ran the gamut from positive (“Your child is going to be so well-adjusted!”) to fearful (“What will I do without you?”). Tustison says the most transference has come from those clients with abandonment issues. “Their intensity has increased and their symptoms have increased the closer we [get to] my due date,” she notes. She adds that she chose to bring her observations of the clients’ reactions into the counseling process to help them explore the roots of their concerns.

Tustison has worked with her clients to normalize the human experience of attaching to someone who then may not be as available due to pregnancy or some other physical issue. She also urges counselors to consider and possibly disclose any physical reactions to pregnancy that may be preventing them from performing their job in the same way they did before. “I have had to make restroom breaks a part of the ‘hour session,’” she says. “My baby is positioned very high, and I often sigh or yawn just to breathe. Both may be seen as inconsiderate or disrespectful but have been unavoidable.”

 

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Contributing writer Stacy Notaras Murphy is a licensed professional counselor and certified Imago relationship therapist practicing in Washington, D.C. To contact her, visit stacymurphyLPC.com.

 

Letters to the editor: ct@counseling.org